Christy, a married mother of two shares her journey as someone living with policystic kidney disease and end stage renial failure.

Thursday, December 6, 2007

The last two weeks

I have been going to dialysis now for almost three weeks..... I had wanted to write about each of my treatments, but life has gotten crazy hectic:

My dad was visiting from Wisconsin, it was so nice to have him here, (his visit had been planned prior to all this dialysis). I did feel bad, because his visit consisted of watching Ethan, (my beautiful 2 year old), and taking me to doctor's appointments. He went home last Wednesday....hopefuly he will be back to visit soon, when things calm down.

my husband ended up in the ER a week after everything happened.....he woke up with trouble breathing... he said he felt like he was drowning... and couldn't get air, so off to the emergency room we went, they ran a bunch of tests, and thankfully found nothing.... I guess it was a panic attack.... I don't blame him one bit for having it... I thinkI need to be more aware that PKD is affecting my family and not just me....I am obviously getting the attention and the "how are you feeling?" questions... but we forget about the rest of my family.

I am worried about my daughter though, she is seven, and to have mommy and daddy go the the hospital within a week of eachother is a lot to handle for a little girl. Her teacher said that she seems to be dealing with it so far, so I will just take her lead.

Hannah was in a holiday dance show this past weekend, and was beautiful. I am so proud of her. I was helping backstage, but had some trouble during the Saturday matinee, because it was right after dialysis.... I just started to feel dizzy and tired... I'm not sure of my limitations yet.

and lastly during my crazy two weeks, I had to go back to the hospital for yet another surgury. My fistula seems to be ok, but it is too deep in my arm, so the doctor had to go back into my arm and lift the artery closer to the surface. The operation was really no big deal, I had a great team, and slept through it... but I have to say, it hurts quite a bit right now... and it is not easy to keep my son from jumping on me.... as much as I love him.......it really hurts. The scar will be the length of my upper arm, and he said that I will probably be able to use my fistula in three to four weeks...... it will be nice to get the cathiter out of my chest.... that will be another surgury.... yikes!

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